View Full Version : Anybody part of the stutteringstudy?
Invictus
11-23-2005, 04:28 PM
Anybody part of the Pagoclone study for stuttering?
The website is www.stutteringstudy.com
I tried to join the test group, but I failed my blood test. Just wondering if anyone here is on the therapy.
Coincidentally, the company Indevus, who makes Pagoclone, has seen a huge rise in their share price, since the the study began. I don't know if some early reports have come out saying the study has been successful.
Cheers.
marcopolo
11-28-2005, 11:17 AM
Great question... Would love to hear about the drug...
Also, why did you fail the bloodwork.. What were they looking for ...if you don't mind me asking ofcourse.
MP
Anybody part of the Pagoclone study for stuttering?
The website is www.stutteringstudy.com
I tried to join the test group, but I failed my blood test. Just wondering if anyone here is on the therapy.
Coincidentally, the company Indevus, who makes Pagoclone, has seen a huge rise in their share price, since the the study began. I don't know if some early reports have come out saying the study has been successful.
Cheers.
studentdoc
11-30-2005, 08:54 PM
Anybody part of the Pagoclone study for stuttering?
The website is www.stutteringstudy.com
I tried to join the test group, but I failed my blood test. Just wondering if anyone here is on the therapy.
Coincidentally, the company Indevus, who makes Pagoclone, has seen a huge rise in their share price, since the the study began. I don't know if some early reports have come out saying the study has been successful.
Cheers.
It doesn't even ask about blood type or tests... I don't get it??? Also, how do you know this is from Indevus?
studentdoc
11-30-2005, 09:18 PM
Anybody part of the Pagoclone study for stuttering?
The website is www.stutteringstudy.com
I tried to join the test group, but I failed my blood test. Just wondering if anyone here is on the therapy.
Coincidentally, the company Indevus, who makes Pagoclone, has seen a huge rise in their share price, since the the study began. I don't know if some early reports have come out saying the study has been successful.
Cheers.
What do you know... i just filled it out, qualified and i'm going in for my physical right now. Will report back.
studentdoc
12-01-2005, 04:14 AM
What do you know... i just filled it out, qualified and i'm going in for my physical right now. Will report back.
So my physical was taken and I had to read and talk while being recorded. Hopefully I will be accepted even though I didn't stutter that much ( I can't stop using my compensatory techniques even if I try). I urge everybody to give this a try if you stutter. They will provide the drugs free of charge 1 year after the study (given you are accepted)
Gary1450
12-02-2005, 07:54 PM
I'm going in Wed. - Dec 7th for my physical.
I'll let you know what the outcome is.
studentdoc
12-06-2005, 02:46 AM
I'm going in Wed. - Dec 7th for my physical.
I'll let you know what the outcome is.
Sweet... everybody should try and take part in the study and at least be part of a potential "cure" for this fukced up situation. I hope this gets approved!!!
EddieO
12-06-2005, 03:14 AM
Studentdoc, what's the details? Is it a cure? Give us details.
Oh, it sounds good.
Eddie
Gary1450
12-06-2005, 02:08 PM
They seem to be pretty selective in choosing people. That's the problem.
This new drug seems to reduce stuttering a great deal. Not necesarily a cure but probably the only thing I'll see in my lifetime that will make a difference.
Gary1450
12-06-2005, 07:11 PM
The blood test has me worried - not because of any drugs :D
But I take a lot of vitamins and I hope that doesn't through things off for me.
I'll let you guys know how things go when I get in tomorrow around 12:00pm noon - Arizona(USA) time.
Gary1450
12-07-2005, 05:39 PM
Well...sorry to dissapoint but I went to the orientation for the stuttering study and...
...Everything sounded great but it required me to take a lot of time off work and my boss won't go for that so I can't participate. They give you $25 per visit so I left with some cash.
But seriously, I just can't be driving 41 miles once every 1-2 weeks for the follow-ups. They were nice and explained everything to me.
I would recomend that everyone on this board try this study.
They only have offices in certain states, countries, but you might even be able to do some type of correspondence.
This drug does seem promising.
studentdoc
12-08-2005, 07:21 AM
Well...sorry to dissapoint but I went to the orientation for the stuttering study and...
...Everything sounded great but it required me to take a lot of time off work and my boss won't go for that so I can't participate. They give you $25 per visit so I left with some cash.
But seriously, I just can't be driving 41 miles once every 1-2 weeks for the follow-ups. They were nice and explained everything to me.
I would recomend that everyone on this board try this study.
They only have offices in certain states, countries, but you might even be able to do some type of correspondence.
This drug does seem promising.
Sorry to hear that. But there are plenty who are enrolled and hopefully I get approved and take part in the study. I didn't stutter that much on the video they made to send to the company to approve me as a participant but maybe they'll accept me. It does sound promising to work. It's in phase III so next step is approval by the FDA that it has significant improvement. We will see. I am a med student and it's hard to take time out but i will manage and the place is only 5 miles from my school. Okay nite.
Bump.
If anyone has tried pagoclone please tell us about your results.
studentdoc
12-14-2005, 09:40 PM
Darn I didn't make the study (stuttered too little in the recording they made). Oh well, I hope that some of us get in on it and ultimately get pagoclone back into the market!
Gary1450
12-14-2005, 09:43 PM
Student Doc -
Pagaclone works to enhance the GABA sites in the brain right?
They sell GABA in healthfood stores - do you think this my work as well to a lesser degree.
studentdoc
12-15-2005, 10:37 PM
Student Doc -
Pagaclone works to enhance the GABA sites in the brain right?
They sell GABA in healthfood stores - do you think this my work as well to a lesser degree.
I will buy some tomorrow after my final and go on it. Let's see what happens.
chrish15
12-20-2005, 04:23 PM
I got a call today on my voicemail after I did the online survey, I have to call back to see if I qualify for the study. I am in college and probably would have the time, I was wondering what are the side effects of this drug. I took paxil for about a month and did not like it at all so I got off of it. Thats the only med I have been on so I was wondering what the effects would be.
chrish15
12-20-2005, 09:04 PM
I called today, and wasn't able to participate because I have been in speech therapy within the past 5 months. He said there hasn't been much response and said to call back and Feburary and I might be considered.
Invictus
01-05-2006, 07:11 AM
Yea, I was initially wondering if anyone was actually on it. I've talked to one person who is on the study and he said it has helped. But he is on a very low dosage. If it's in Phase III already its good news, because the drugs will be approved in Europe a whole lot sooner than the FDA in the US approves it. You could possibly get the medication a whole lot sooner if you really wanted it.
How much did he say it helped?
studentdoc
01-15-2006, 09:50 PM
Student Doc -
Pagaclone works to enhance the GABA sites in the brain right?
They sell GABA in healthfood stores - do you think this my work as well to a lesser degree.
Does it enhance GABA sites? I'm not sure but I'm sure there are drugs out there that do the same thing Pagaclone does. Does anybody know what Pagaclone does for sure?
Invictus
01-19-2006, 09:50 AM
How much did he say it helped?
I talked with the guy on the Pagoclone study. He said it has helped alot. Basically what he says is it makes him not think about the stuttering as much anymore, and he doesnt have those thoughts underlying in his head all the time.
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